Patient Partner Workshops
At Mapi, we’re strong advocates of making patients full participants in the process, not just as an audience or market research respondents. We find that interactive, hands-on workshops are the best way for patients to offer their vital insights. So we created the Patient Partners Workshop.
At our Patient Partners Workshops, patients freely interact with others with their condition, openly express their needs and priorities, and share their daily burdens and triumphs. The workshop is a safe, supportive environment that encourages participation and investment in the process. Our extensive experience in direct patient care and health education creates the space for this open dialogue and our expertise in instructional systems design helps us to create experiences that encourage patients to feel comfortable sharing emotions and information.
Depending on the business objective, a Patient Partners Workshop could include activities such as story sharing, co-creation, experience mapping, bio-poems, and other techniques designed to encourage authentic exchange and deliver actionable insights to inform our clients’ decisions.
The Patient Partner Workshop is the activity that we use to initiate several additional patient insight and engagement activities. These include:
Patient Advisory Panels — Patients participating in our workshops are often eager continue their involvement with drug development and the companies that hire us to run these workshops. We build and maintain Patient Advisory Panels to engage patients over a longer period time to provide ongoing feedback on clinical research design, interpretation of study results, recruitment and communications.
Patient Experience Mapping — Patients can also provide more in depth description of their disease using our method of longitudinal interviews and literature reviews to provide a mapping of different patient concerns over the course of their illness or in relation to series of specific medical encounters. This information can be very beneficial in development of improvement in patient outcome assessment, clinical trial conduct and pharmaceutical marketing.