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2nd Multi-Stakeholder Symposium on Improving Patient Access to Rare Disease Therapies

February 22, 2017 @ 08:00 - February 23, 2017 @ 17:00 UTC+0

Event name:

2nd Multi-Stakeholder Symposium on Improving Patient Access to Rare Disease Therapies

Event date:

22 - 23 February 2017

Event location:

Hotel Le Plaza Brussels Boulevard

Adolphe Max 118 - 126, Brussels, Belgium

Tel. + 32 2 278 01 00

Metro Station: Rogier

Event description:

This Symposium on improving patient access to rare disease therapies will bring together patient advocates, payers, HTA bodies, academics, clinicians, policy makers, investors and industry representatives. It will enable participants to understand the interests and challenges of each stakeholder group, to discuss current and emerging initiatives and to continue to work together to improve patients’ access to rare disease therapies. The ultimate goal is to reach affordable, sustainable and long-lasting solutions to improve patient access to rare disease therapies. We recognize that there is not one simple solution, but instead numerous initiatives, some of which are already in development and in some cases are being piloted, and others, which are new but promising. There are many voices advocating for change in healthcare. Those that have the biggest impact understand the need to include all stakeholders in the process.

This symposium is a truly multi-stakeholder platform for dialogue and will provide a neutral, open environment for discussion. All stakeholders will be encouraged to engage in conversation to express the interests, needs, concerns, and aspirations of the group that they represent and to respond to all others with respect, understanding, and creative ideas. We will build on existing work streams and progress on elements from the first symposium. The goal of this second symposium is to develop a cooperative process for reaching mutually acceptable solutions that respect all stakeholders, that enhance and sustain trust, and that build mutual understanding of each other’s perspectives and expectations.

Please note that the language of this event is English. See the advanced programme at http://download.eurordis.org.s3.amazonaws.com/ertc/Programme_2nd_Multi-stakeholder_Symposium_2017_Brussels.pdf and view more information (venue, travel & accommodation, programme committee and official partners). Learn even more at http://www.eurordis.org/publication/multi-stakeholder-symposium-improving-patient-access-rare-disease-therapies

Mapi's Participation:

Mapi Group's Xavier Fournie, MD - Corporate Medical Director, Executive Vice-President, Global Medical Affairs – Real World Evidence will hold the role of Rapporteur for Breakout Session #1  – Emerging options: Quality Data Generation / Pan-European disease & product registries to address needs of all stakeholders on Day 2 - Thursday, 23 February 2017 from 09.00 – 11.00 am.

Register now to attend:

Registration is now closed for this event. Should you have any questions concerning your registration, please contact emilie.zingg@eurordis.org


February 22, 2017 @ 08:00
February 23, 2017 @ 17:00
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