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Usability Testing of electronic Patient Reported Outcomes (ePROs)
November 24, 2015 @ 10:00 - 11:00 UTC+0
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Catherine Acquadro, MD
Scientific Research Consultant, Mapi Group
With over 20 years of experience in the field of Patient-Reported Outcome (PRO) evaluation, Catherine Acquadro, MD, provides medical advice at Mapi Research Trust (MRT) and Mapi (HEOR, Linguistic Validation and Real World Evidence). She is actively involved in scientific communication (she is a skilled medical writer), in the development of collaborative projects, and in the audit of MRT databases (PROQOLID, PROlabels, PMR and Outcomes Insite) as well as in new developments.
She Joined Mapi in 1991 to create the Quality of Life Newsletter, known now as the Patient-Reported Outcomes Newsletter. In 1992, she was the European-based coordinator of the IQOLA Project (cultural adaptation of the SF-36 in other languages). She was involved in the early development of the linguistic validation methodology to translate health-related quality of life (HRQL) instruments for use in multi-national clinical trials, and was the first Managing Director of Mapi Research Institute in 1995.
From 1997 to 2007, she was the coordinator of the European Regulatory Issues on Quality of Life Assessment (ERIQA) Group, and from 2000 to 2002 the coordinator of the PRO Harmonization Group. She was also co-convener of the Cochrane Collaboration PRO Methods Group from 2001 to 2007 with Donald Patrick and Gordon Guyatt. She received her MD from the University of Grenoble (France) in 1990. Her medical thesis was about Inikagapi, a Lakota (Sioux) ritual of healing and renewal (sweat lodge).
Alexandre Itani [Guest Speaker/Co-host]
International Project Manager, Language Services, Mapi Group
Paul O'Donohoe [Guest Speaker/Co-host]
Director of Health Outcomes, CRF Health
Paul O’Donohoe is the Director of Health Outcomes at CRF Health and is based in their London office. He is responsible for developing the company’s internal health outcomes expertise and supporting clients across the range of scientific issues that can arise during the course of a clinical trial. He is passionate about developing the field of eCOA through research and active involvement in industry consortia. Previously Paul worked as a research psychologist at a child and adolescent mental health clinic based in Dublin, Ireland. He moved into the health consulting field with United BioSource Corporation where he worked across the health outcomes, health economics and health data capture groups. He has a MSc in Cognitive and Clinical Neuroscience.
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